Our Life With MS

Thanks Nanda and Jen! Elisabeth...oh no...sorry y...

2009-09-20T10:20:15.664+02:00

Thanks Nanda and Jen!

Elisabeth...oh no...sorry you also had to experience the whole 'Dr. House' thing...

Nien and Jenna...thanks for the kind words of supp...

2009-09-20T10:17:30.469+02:00

Nien and Jenna...thanks for the kind words of support - we really appreciate it and draw a lot of positive energy from knowing there are so many people out there who genuinely care!

Thanks for the link to the blog. I've had a co...

2009-09-16T13:32:34.478+02:00

Thanks for the link to the blog. I've had a couple of MRIs (without Xanax, and of my hip and leg) and can totally identify with the clausterphobia and panic! Even if you are not normally prone to them they just creep up on you. And you're right - it does feel like being in an episode of Dr. House. (I had to push the panic button and call for help too).

What a beautifully written post, Jack! Silvia is s...

2009-09-08T14:31:42.865+02:00

What a beautifully written post, Jack! Silvia is so great and probably just the support you need. You are such a positive and amazing couple!

Hi Jack, A very recognizable story. I got my diag...

2009-09-08T13:26:05.538+02:00

Hi Jack,

A very recognizable story. I got my diagnosis in 2002. The odd relief when hearing it, the questions, the worries about the future. All of it.

I want to wish you the best and lots of strength coping with the diagnosis. Give yourself a little time to mourn your loss, because it is, and remember there is so much to still enjoy.

Good luck to you and Silvia.

Thanks for sharing your emotional and physical rol...

2009-09-05T11:52:05.903+02:00

Thanks for sharing your emotional and physical roller coaster. I look forward to future posts. You are in my thoughts and prayers!

Hey Jack, Rreally, REALLY glad to hear that thin...

2009-09-01T13:48:54.782+02:00

Hey Jack,

Rreally, REALLY glad to hear that things are "looking up".

And thank you for sharing your journey.

~ Nanda

Hi Barry... Thanks for the comment and general goo...

2009-09-01T07:02:07.334+02:00

Hi Barry...
Thanks for the comment and general good vibes! Things are looking up as you will see in upcoming posts (need to get myself caught up)...Thanks also for sharing the info about your friend - yes, it is true there are so many people out there with this disease who manage to carry on with a 'normal' life...

Hi Jack, I'm truly sorry to hear about your i...

2009-08-31T21:19:24.366+02:00

Hi Jack,

I'm truly sorry to hear about your illness and wish both you and Silvia all the best as you go through this together. I have a good friend who was diagnosed when she was 22 (almost 20 years ago) and I marvel every day at how she has learnt to deal with life, a career, love from a great partner, marriage and 2 beautiful children on top of everything!

Barry

When I was a kid our school terms lasted six weeks...

2009-08-25T19:35:04.539+02:00

When I was a kid our school terms lasted six weeks and that seemed like an eternity ... how things could change from one report card to the next. Now it seems like six weeks is hardly enough time to update a simple website.

But here you document how long and disconcerting and full of change six weeks can still be.

My honoured that you choose to share your story.